Fibrodysplasia Ossificans Progressiva, or FOP, is one of the rarest and most disabling genetic conditions known to medicine. FOP progression is variable and unpredictable and can shorten the life expectancy of sufferers.
Over a period of time it causes muscles, ligaments and tendons to form into bone, forming skeleton on top of skeleton, causing restricted movement. This new bone, or ossification, can mean that the sufferer is no longer able to move the joint.
Laura Lofthouse nominated FOP Friends as this month’s charity. This is why:
“My main motivation for nominating the charity is from my little cousin, Jasmine. FOP Friends is a charity supporting those diagnosed with Fibrodysplasia Ossificans Progressiva, like Jazzy.
There is currently no cure for the disease and FOP Friends is a great charity which has been set up to help those and their families affected by FOP. It’s is an incredibly rare condition affecting 1 in 1,400,000 and monies raised on behalf of the charity go towards research into the disease currently being carried out at Oxford University, in the hope that one day a cure will be found.
If you would like to have a look at the website it can be accessed here –FOP Action